Pinktober Profiles: October is Breast Cancer Awareness Month. For my part in raising awareness, I’m going to profile a survivor, previvor or caretaker each day. As part of the breast cancer community, I’ve been blessed to hear so many stories of strength, perseverance, hope, struggle, survival, and courage. To me, those stories bring real awareness about this disease. The women I profile this month honor me in allowing me to write their story. Please join me in celebrating them and share their stories widely!
October 3, 2014
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First the short wait for the radiology appointment. Then there was the waiting between the mammogram and the ultrasound, about an hour, during which Melissa sat in what equates to a closet with a curtain, nothing but old magazines and some crazy old lady shrieking in the closet next door to entertain her. Needless to say, her nerves were shot. More waiting after the ultrasound images were taken (to confirm they'd gotten all the images they needed), and then Melissa was sent home to wait for a call from her doctor. When the doctor called, noting "suspicious areas" in the images, Melissa was referred to a breast surgeon. She ended up having a biopsy that day, even though she hadn't known that would happen. That was followed by more waiting. She'd have her biopsy results the next evening.
Melissa called on a dear friend to help her get through the wait. She was expecting a call at 5:30, but the phone didn't ring. Minutes crept by slowly. Then, at 5:45, her breast surgeon called with bad news. Melissa had two tumors, one was cancerous (Invasive Ductal Carcinoma), the other precancerous, and she was scheduled for surgery to remove her breast. Her friend, Stephanie, hugged her tight, held her hand and cried with her until her husband got home that night. She leaned on him while a million thoughts ran through her mind. "Why? I'm not ready! I'm only 36. How do I tell my 7-year old?"
Maybe some people take it for granted, but Melissa was well aware of just how important her breasts had been in her life. They'd been part of what felt beautiful, intimate, womanly. They nurtured her children. Just before surgery, Melissa remembers having time to really think about the impact of this loss while she time waiting for the uptake of the sentinel node dye. This would be the last time she would see herself as she'd always been.
Surgery went well, aside from a nasty reaction to the pain medication which gave Melissa hives and made her itchy from head to toe. Her sentinel node had looked clear, and she was home the next day, on her way to recovery. Then came a call with more bad news. 2 nodes were actually positive. She was now stage 2b, and would have more surgery the following week to remove the rest of the nodes. It felt like "a punch to the gut," she recalls. And she wasn't prepared for what happened after the nodes were removed. The back of her upper arm was numb, her chest was numb, and the few areas that had feeling experienced a strange nerve pain which made her jump when touched. She got lymphedema, which meant swelling, physical therapy, compression sleeves, manual lymph drainage, pumps. She also had bad reactions to medications she needed to take, like Tamoxifen, Lupron, and Femara. "Even though the mastectomy was bad," she says, she feels lucky to not have needed chemo or radiation. The hardest part is the waiting, she says. "Patience is a virtue, and it gets tested!" Waiting for appointments and test results that determine the next step is a necessary evil in this process. One that surely tries the "patients."
Awareness Tidbit: Lymphedema can happen at any point after the removal (or blockage) of lymph nodes. These nodes play an important role in clearing bacteria from the body through a network of delicate vessels that carry fluid from infections and wound sites through the lymphatic system. Heat, burns, bites, cuts, and rashes can aggrivate lymphedema, causing swelling of the soft tissues throughout the affected limb.
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Melissa has a lot of great advice for anyone facing cancer:
- Keep a positive attitude, but know it's ok to be upset, cry, be pissed off at the world, laugh, be happy.
- Talk when you feel like it.
- Ask for and accept help.
- Reach out to one of the many wonderful support organizations. Melissa loves the people she's met through the Pink Heals organization and knows the special bonds that develop between survivors, fighters and the taken.
- Music can be healing.
- Hugs are awesome.
- Just know that "every little thing will be alright."
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